Resources

Included here are some materials you might find helpful for research projects using systems and guidelines developed for CAPriCORN.

Websites and electronic resources

Websites and electronic resources

CAPriCORN Website - Includes additional information on network-wide processes and resources. 

Chicago Area Institutional Review Board (CHAIRb) Portal - use for submitting projects to the Chicago Area Institutional Review Board (CHAIRb). CHAIRb is the University of Illinois at Chicago’s Institutional Board (IRB) #7, which is serving as a central IRB for CAPriCORN.

Rush Research Portal - use for submitting projects to Rush’s Institutional Review Board (IRB)

Rush Form 118 - use for getting documentation that Rush’s IRB has determined your project is not human subjects research

Rush Data Request - use to request data from the Rush IS department

REDCap at Rush - REDCap is a mature, secure web application for building and managing online surveys and databases

Common Data Model information

Common Data Model information

PCORnet CDM Lay Guide - general information on the PCORnet CDM and how to use it. The structure of the CAPriCORN dataset at Rush follows the CAPriCORN Common Data Model (CDM). The CAPriCORN CDM, itself, is an expansion of the Patient Centered Outcomes Research Network (PCORnet) CDM. 

PCORnet CDM, Version 6.0 - more detailed information on the sixth release of the PCORnet CDM and what changes that release included. The complete variable tables begin on page 21. 

PCORnet CDM Glossary - a glossary of terms used in the PCORnet CDM

 

Samples of Available Rush Data

Samples of Available Rush Data

Total Individuals With At Least One Encounter in the Rush CAPriCORN CDM: 1,269,916

January 1, 2011-July 31, 2021

 Variable  Level

Overall

 N=1,269,916

Age

 <18

 18-24

 25-44

 45-64

 65-74

 >75

Unknown

 162,086 (12.76%)

 92,919 (7.32%)

 396,459 (31.22%)

 334,789 (26.36%)

 147,840 (11.64%)

135,811 (10.70%)

12 (0.00%)

Sex

Male

Female 

Unknown

 562,035 (44.26%)

 707,674 (55.73%)

 207 (0.02%)

Race

White

Black/African American

Asian

Other 

Unknown

 650,055 (51.19%)

 298,495 (23.51%)

 43,078 (3.39%)

 208,122 (16.39%)

 70,166 (5.53%)

Ethnicity 

 Latinx or Hispanic

Not Latinx or Hispanic

Unknown

 240,011 (18.90%)

 975,126 (76.79%)

 54,779 (4.31%)

Top 15 Diagnosis Codes and DRGs - These tables display the top 15 diagnosis codes (ICD-10) or DRGs for encounters from October 2015 to April 2018.

Demographic Data in the CAPriCORN Network - This document outlines the basic demographic data for patient encounters in the CAPriCORN CDM across the entire network.

Demographic Data by Priority Conditions - The below reports outline the basic demographic data for patients with conditions in the following priority areas for research at Rush.

Demographic Data by Priority Conditions - Cancer

Demographic Data by Priority Conditions - Inflammation and Infection

Demographic Data by Priority Conditions - Musculoskeletal

Demographic Data by Priority Conditions - Neuosciences and Aging

Demographic Data by Priority Conditions - Disability

Demographic Data by Priority Conditions - Additional Conditions 

Documents and templates

Documents and templates

Here are documents and templates you may find useful in building a research project.

CAPriCORN at Rush Terms of Use Agreement - this is the Terms of Use agreed upon by the Rush CAPriCORN team and investigators.

Internal Project Cost Estimates - this document outlines the cost associated with Rush investigator-led internal projects with CAPriCORN at Rush. 

Template Study Protocol - this is a general template for writing a study protocol using the CAPriCORN database

Sample Counts Request Purpose - this is a general template for a purpose statement used for submitting a Form 118 at Rush for aggregate counts using the CAPriCORN database

CAPriCORN CPT and HCPCS Codes - Current Procedural Terminology (CPT) and Healthcare Common Procedure Coding System (HCPCS) Codes. These codes are used for billing and may be useful for finding procedures and visit types. 

CAPriCORN DRGs - Diagnosis Related Groups (DRG) Codes are used to group an admission under a root cause. These are very broad. They may be helpful for finding inpatient admissions related to a common problem.

CAPriCORN ICD-9 Codes - International Classification of Disease (ICD) Codes, 9th edition. These codes are used for encounter diagnoses and may be helpful for finding patients with specific conditions. The 9th edition is no longer in use at Rush, it was replaced by ICD-10 in October 2015.

CAPriCORN ICD-10 Codes - International Classification of Disease (ICD) Codes, 10th edition. These codes are used for encounter diagnoses and may be helpful for finding patients with specific conditions.

CAPriCORN Medications - This is a list of medications pulled from Epic at Rush and categorized using broad medication categories.

ICD Phenotypes - This is a list of ICD-9 and ICD-10 codes by Global Burden of Disease (GBD) 2016 nonfatal causes, impairments and nature of injury categories. This may be used for determining what ICD codes should be listed for a given condition.

CCW Chronic Conditions Code Lists - This resource provides lists of ICD-9 and ICD-10 codes for common chronic conditions and other chronic health, mental health and potentially disabling conditions, provided by the Chronic Conditions Data Warehouse. 

 

For more information on CAPriCORN at Rush, please contact Kyra VanDoren at Kyra_R_VanDoren@rush.edu.